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Rare Diseases Resource – Bringing Recognition and Awareness to Rare Diseases — 18 websites ranked by shared content topics, category and on-page relevance.

Each result shows its full tech stack, contacts and AI-policy — not just a name · Browse all sites in Brain And Nervous System Disorders →

Domain	Match	Title	Country/Lang	Category	AI files	Contact	AI-protection
rareimpacts.org ↗	74 match 1 shared topics	Rare Impacts – Raising Awareness for Rare Diseases	en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
rdiac.org ↗	74 match 1 shared topics	Rare Disease Innovation & Advocacy Coalition (RDIAC) – Uniting Voices for Rare Disease Innovation and Impact	en	brain-and-nervous-system-disorders WordPress	robotsllmsaihumans	emailphone	none
rarediseaseqs.org ↗	70 match 1 shared topics	Developing QS for rare disease across the rare disease community	en	brain-and-nervous-system-disorders WordPress	robotsllmsaihumans	emailphone	none
rarelyheard.org ↗	69 match 1 shared topics	Rare disease podcast \| Rare disease stories \| Rarely Heard	en	brain-and-nervous-system-disorders Squarespace Magento	robotsllmsaihumans	emailphone	none
rarediseaseyouth.org ↗	69 match 1 shared topics	Rare Disease Youth Association	en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
rarealliance.org ↗	68 match 1 shared topics	RareAlliance｜Uniting rare disease communities	en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
rarediseases-conference.com ↗	68 match 1 shared topics	International Conference on Rare Diseases – Building a brighter future together	en	brain-and-nervous-system-disorders WordPress WooCommerce	robotsllmsaihumans	emailphone	none
rare2026.com ↗	68 match 1 shared topics	The 7th International Conference on Rare Diseases (Rare2026)	en	brain-and-nervous-system-disorders WordPress	robotsllmsaihumans	emailphone	partial · 8
rarecommons.org ↗	68 match 1 shared topics	Rare Commons – Rare Disease Research & Collaborative Platform	en	brain-and-nervous-system-disorders WordPress	robotsllmsaihumans	emailphone	none
rdod.org ↗	68 match 1 shared topics	RARE DISEASES AND OUTCOMES DATABASE - Home	en	brain-and-nervous-system-disorders Weebly	robotsllmsaihumans	emailphone	none
ctfac.net ↗	68 match 1 shared topics	Coming Together For A Cure \| Resources & Community for Rare Disease Families	United States~ en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
ctfac.org ↗	68 match 1 shared topics	Coming Together For A Cure \| Resources & Community for Rare Disease Families	United States~ en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
rarecaregiver.org ↗	68 match 1 shared topics	Caring for Rare Disease Caregivers	en	brain-and-nervous-system-disorders WordPress Lightspeed	robotsllmsaihumans	email phone	none
rarecaregivers.org ↗	68 match 1 shared topics	Caring for Rare Disease Caregivers	en	brain-and-nervous-system-disorders WordPress Lightspeed	robots llmsaihumans	email phone	none
rarediseasesc.org ↗	68 match 1 shared topics	South Carolina Rare Disease Advisory Council	en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
rarediseasenepal.org ↗	67 match 1 shared topics	Rare Disease Society Nepal	en	brain-and-nervous-system-disorders	robotsllmsaihumans	emailphone	none
megdagainstmenb.com ↗	67 match 1 shared topics	MegD against MenB - Meningitis Awareness and Support	en	brain-and-nervous-system-disorders Weebly	robotsllmsaihumans	emailphone	none
cureautoimmune.org ↗	67 match 1 shared topics	Autoimmune Association \| Awareness, Advocacy & Research	United States~ en	brain-and-nervous-system-disorders WordPress	robots llmsaihumans	email phone	none

How the match score works

Each match is a 0–100 similarity score — the higher it is, the more two sites resemble one another. It’s computed automatically from our own crawl data (never from what a site says about itself) by combining several independent signals, so a high score means several of them point the same way:

shared topics how many of the same fine‑grained content topics (IAB sub‑categories) both sites cover — the main signal.
same category whether they sit in the same business / industry category.
content & title how closely their titles and page descriptions line up in wording and meaning.

No single signal decides the result — they’re blended together. Treat the score as a way to rank candidates rather than an absolute percentage; the chips on each result show which signals contributed.