Piperic
domain profile
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Contact

Email
w•••@a•••.comj•••@a•••.com
Social
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Category & trade

Primary
Tree path
Medical Health › Diseases and Conditions › Brain and Nervous System Disorders
Group (tier-1)

Tech stack

AI readiness

AI-Readiness score
34 / 100 · partial · see similar
AI training policy
allowed
AI-bot protection
AI files
llms.txt ai.txt humans.txt robots.txt

Compliance (GEO / GDPR)

TLD

Overview

Title
EDS and CTD New England/MA Support Group – Awareness, Support, and Education for Ehlers-Danlos, Marfan, Loeys-Dietz & other rare Connective Tissue Syndromes
Description
The EDS and CTD New England/MA Support Group continues the work that patient advocate Jon Rodis created a decade ago. What began as a modest patient-run support group now offers regular meetings attended by some of the foremost doctors, researchers, professionals, and advocates in the Ehlers-Danlos Syndromes, Marfan Syndrome, and Loeys-Dietz community. As well, we…
Final URL
Language
en (html)
Scanned at
2026-07-05 03:11:18

All detected technologies

WordPressGutenberg Core