On January 9, 2014, our son Zacchaio was born via emergency c-section at 33 weeks old. Although our Zacchaio has overcome his acute medical issues in the NICU, we're now faced with his rare diagnosis of Epidermal Nevus Syndrome. We don’t know what developmental hurdles to expect with our son’s diagnosis in five years, in six months, or even tomorrow. We can only embrace his journey and all the discovery that comes with it, not looking too far ahead and enjoying the beauty that is today.